RESOURCES

I have compiled a list of websites that I believe will be helpful to you on your journey. This is by no means an exhaustive list, but rather a tour of the types of resources that are out there.

 

CONSIDERING AND COMMUNICATING PERSONAL PREFERENCES

The Conversation Project

Its “starter kit” and other tools are dedicated to helping you begin the conversation with friends and families about their EOL wishes.

Go Wish

A simple card game for the whole family that provides an easy, even entertaining, way to talk about what’s most important with the people who matter the most.

PREPARE

A website utilizing videos of people thinking about their EOL preferences to walk you through the steps of choosing a surrogate decision maker, determining your own preferences, communicating these preferences. It functions as an online coach, and motivates you to get started on the process.

Death Café

Gatherings of people, often strangers, at a variety of coffee shops and yogurt bars in your area, with a downloadable guide to the conversation.

Death Over Dinner

Organized dinners for whoever is interested, with prompts and materials provided to encourage and facilitate deep communication and conversation.

 

DOCUMENTING YOUR PREFERENCES

National POLST Paradigm

A website that provides state-specific POLST forms

Five Wishes

The Five Wishes form functions as an advance directive in most states, but uses more ordinary language and focuses more on personal and spiritual priorities.

Advance Directive Forms for your state

My Directives

This website is similar to Prepare for your Care in helping you think about your preferences, but goes further by helping you to create an actual Advance Directive which can be emailed to your doctor and family.

 

HELPFUL WEBSITES

Get Palliative Care

A comprehensive guide to the benefits of palliative care medicine

Caring Info

Offering guidance to those dealing with serious illness, including advice on advance care planning, grieving, and caregiving

National Healthcare Decisions Day

A wide range of links and resources to encourage and support advance care planning

FOR HEALTHCARE PROVIDERS AND INSTITUTIONS

ACP Decisions

Video library of decision aids to help patients and their clinicians discuss difficult topics in a neutral fashion.

Vital Talk

Teaches clinicians to communicate with their patients more skillfully and honestly about difficult topics

Lown Institute

Promoting patient-centered approaches to healthcare

Ariadne Labs

Provides guidance for clinicians to initiate conversations about serious illness

Center to Advance Palliative Care

Resource for hospitals and other healthcare settings interested in developing palliative care programs.